I have to learn to walk, again and again, until I adapt my walk to my body—my pace, not my idea of pace
It’s really good to have you back. You’ve been missed around these parts! Nathan and I have been counting the Full Moons until you returned... 🌕😊
I’m so sorry for all that you’re going through, and I’m so inspired by both your vulnerability and your strength; your Hope. I’ll be hoping that you’ll get some answers, soon.
Welcome back, Nadia!
Very sorry to hear of the setbacks and the pain, but hopefully things are improving and the warmth of Substack will only serve to expedite that recovery 🤗
So sorry you've had a setback, Nadia, but maybe this new lead will turn into some relief - fingers crossed for you, and sending healing thoughts on all channels. I was recently introduced to the idea that something can be both totally reasonable AND open to improvement, and if that's not life in a nutshell, I don't know what is. We can only move forward. ❤️
Such a misery, this painful time and such a trial. You are quite an inspiration.
“I’m so tired, I’m so done. I want to heal.” I know this mantra so well. It was mine for decades, through various illnesses, but especially eight years ago when the most torturous neurological disorder descended into me. I wanted out, I wanted it to end, and I tried literally everything to make it go away. Until...I had to stop trying. For me, the peace came when I didn’t “accept” it but I allowed the symptoms to be part of my experience. In the allowing, my brain could finally relax, finally realize it’s not in danger, finally, FINALLY, rest in kindness and compassion for my experience. And while, 8 years later, I still love with these symptoms daily, I’m at peace. It’s a wild conundrum to have found contentment within discomfort. I share this not because it’s everyone’s path, but definitely mine. Wishing you calm days ahead Nadia.
Welcome back! This post hit hard, so thank you for sharing this. Keep on keeping on.
Nadia! I’m so happy to read your words again. And, sending all the hugs as you navigate this setback. I’m sorry to hear of it. Thinking of you ❤️
Welcome back, Nadia <3 I hope you are getting the support you need and deserve
Firstly, as has been said multiple times, we are so so glad to have you back! Huzzah!
I’m so sorry for what you’ve been going through with the sciatic nerve pain💞Some of your symptoms like tingling in the hands I’ve also had, randomly on and off (but only for a minute at most when it does show up) for years. It usually happens specifically in my left hand, when I’ve had my elbow pressed directly on a table/flat surface for a few minutes. Being a lefty, if it ever gets worse, means that I’ll have to switch to writing with my right hand, which I can already do but the writing isn’t as pretty, lol. I hope the doctors will be able to help you. Hugs!!!
Take the time that you need, write and post when you’re able to/feeling up to it. We’ll be here, eagerly awaiting to read what you have to say about whatever you want to talk about. Many more huzzahs to you and Carpe Diem!💜
Hello Nadia, I found your story on notes, I'm sorry to hear about the suffering you have experienced 🧡 Praying for healing and peace for you. God bless you, love Emma
You have those, but you have us too here on Substack, don't forget! :D Welcome back!
Sorry to hear you're going through all that, hopefully you managed to get a lot of reading done as you planned. (It sounds like you did, and I'm excited to read all about it!) I'm confident the doctors will dig up that puzzle piece you're looking for at this moment.
Really glad to see you back. Your presence on the platform was definitely noticed and missed.
Also, thank you for your openness and sharing your story. You weaved it together really well.
Take your time.
Looking forward to what’s next!
I found your post in Notes and I relate so much to it. I have post-COVID small fiber neuropathy, among many other diagnoses I had never even heard of in the “before times.” I’m not sure where in the world you’re located (I’m in the U.S.), but my neurologist referred me to a neuromuscular specialist for the SFN. I had never even heard of such a specialty. She’s running a bunch of tests. Happy to connect with you on any of that.
Also, for chronic pain, check out the YouTube channel Pain Free You.
Hope you’re feeling a bit better soon.
I’m so glad you’re back, Nadia! I hope you had a satisfying holiday. I’m so sorry to hear about all the pain, but at the same time feel deeply grateful to be among the people you’ve chosen to share such intimate, vulnerable stories with. I hope that one day you’ll get to experience life without pain again.
As always, I’m looking forward to new posts from you!
Sending you all my healing thoughts and well wishes, Nadia. 🤗 Happy you are back!
Wishing you all the best, Nadia. You, and your words, are powerful! Sending lots of love!